Cassidy's Journey Through Osteosarcoma

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This is a dedicated blog for updates on Cassidy's fight against Osteosarcoma, and to witness and testify the greatest love of God to all humanity by all the love, prayers and supports the brothers and sisters in Christ are pouring onto little Cassidy and the Sheng's family. . . . . . . . . . . "God is Love" John 4:16

< 直接進入祈禱網<<Go Directly To The Prayer Page!>>直接進入祈禱網 >

By the request and suggestion of some concerned brothers and sisters, due to the reason that some of those who are diligently praying for Cassidy and her family are from all around the world and may not know our circle of friends personally, the regular Blog posting may confused them because Dr. Jesse would sometimes refer to people by the names known to local circle only. Therefore, this new Prayer page is made for those who would like to just see the updated prayer needs of the Sheng Family so they can pray more specific prayers for them. So feel free to pass this site onto more prayer buddies to effect a greater prayer power. Thus the name of this new site http://PowerPray.blogspot.com


Tuesday, August 5, 2014

PLEASE SMS or Call Carmen Before Any Visit

Dear All,

Listener wants to emphasize the followings:

1. Please SMS or call Carmen BEFORE you visit.

2. CaCa's blood count will be low. If you are sick and/or not feeling well, or recovering from illness, please DO NOT visit her. Your love and prayer support are appreciated. 

Thanks for your attention! 

Blessings,
Listener.

Rough morning. Home tomorrow.

August 5, 2014.

Cass's was having a rough morning, she didn't get much sleep last night due to the pain on her back. Her doctors are looking for other ways to control her pain. They will do a P53 Genetic test on her soon. Hopefully they will find out more about Cass's cancer as her situation is very rare at Sickkids. Dr. Hopyan, who was her surgeon when she was 7, came and talked to Cass about the possibility of doing the surgery to remove the tumours on her spine and use surgery to ease the pain. But he said all of them were not good options for her. There's no way he could do the surgery on her as there are more than many lesions which they were 360 degrees all around the spine. They are hoping that chemo and radiation will be able to control the growth of the tumours so that she will have some quality time to do things she likes to do.

Cass is going home tomorrow to rest before her next cycle of chemo. Hopefully she will have some good rest and recovery from chemo and radiation before her next cycle of chemo in about 2 weeks.

Please make sure you call or SMS Carmen before you go visit Cass as her blood count will drop and may not be good for her to see many people. 


Again, thank you so much for your prayers and support. Please continue to pray for her. God bless!

Pray for the church, pray for Cassidy

August 4, 2014.

Dear all,

During the long weekend of the Civic holiday, Cassidy and I enjoyed some quiet time in Sickkids. She said to me this morning:"If you don't bother me, I will allow you to stay one more night." I know that she wanted me to stay with her. Sadly I said:"Sorry hon, daddy needs to work tomorrow. I can't stay here overnight." Then I gave her a homemade cake in exchange for her happy face.

Life is short and fades away quickly. Is it only when we are faced with death that we learn to care? Thank God our family accepted Christ as our Saviour, and we know that we have hope whether we see an exit or not. When we cry:"My God, my God, why have you forsaken me?" You say:"Come to me, all you who are weary and burdened, and I will give you rest." Yes, you're willing to take the yoke with us; who shall separate us from the love of Christ?

Thanks to the brothers and sisters who prayed hard for Cassidy. May the fire of the Holy Spirit in your hearts never cease, but pray not only for us; pray for those with unmet needs, pray for the leaders, and pray for the pastoral staff. Although we can't join you in pray at this moment, our hearts are close by in Christ. May the fire of the Holy Spirit revive us and make the Church of Christ a praying church. Amen!

公 民日的長週末,當其他人享受著悠長假期時,我在Sickkids享受著與Cassidy單獨共處的好時光。她今早對我說:「如果你不煩我的話,我准許你今 天晚上陪我。」我知她很想我在醫院陪伴著她;我無奈地說:「對不起,daddy明天需要工作,今晚不能留在醫院了。」望著她一臉落寞,唯有送上已準備好的 homemade蛋糕(thanks to Catherine),換回她的笑臉。

人 生苦短,當我們以為來日方長的時候,生命其實不斷的損耗掉,難道要在死亡逼近時才懂得珍惜嗎?感謝神讓我們一家認識了耶穌基督,讓我們知道人生充滿盼望, 縱然前面是漆黑一片,看不見出路、更加看不見光;當我們呼喊:「我的神,我的神!為甚麼離棄我?」祢說:「凡勞苦擔重擔的人可以到我這裏來,我就使你們得 安息。」是的,主耶穌願意和我們同負一軛,有甚麼能令我與基督的愛隔絕呢?

弟兄姊 妹,感謝你們懇切為Cassidy祈禱,願聖靈之火在你們心中永不熄滅,不單為我們祈求,也為有需要的弟兄姊妹祈求、為教會的領袖祈求、為傳道人祈求⋯⋯ 雖然我們暫時
不能與你們一同禱告,但我們的心在基督裡仍能如此地貼近。願復興之火燒遍眾教會,願基督的教會成為禱告的教會,阿門!

In Christ,
Andy

Monday, August 4, 2014

Lots of Love! SMS Carmen before visit

August 3, 2014.

Love pouring down.....friends and families sending her lots of love...

She was so happy to see her school friend, Fiona from Northlea as most of them were on vacation or summer camp. She was taking pictures with all her little cousins with her Polaroid camera and treasure every pictures so much she was so afraid that mama would not keep them in a safe place.

 
Cass & Fiona
Cass & Cousin
Friends from church sending her lots of little messages and beautiful painting to decorate her room. She was asking mama to read every single message for her to make sure she didn't miss any of the message. Many many friends came to see her so she was so tired and not feeling well for staying up for too long.





August 4, 2014.

She had done her 4th radiation this morning. She vomited after the radiation as usual. She's been sleeping since then. Lots of friends coming down to see her by late afternoon. However, the nurse was telling us that her blood count will be dropping dramatically in the next two days. And she needs about a week to recover from the blood count. It'd NOT be good for her to see so many people.

PLEASE MAKE SURE you SMS Carmen BEFORE you visit her.

Her radiation schedule for tomorrow will be at 5 pm.


Sunday, August 3, 2014

Cheer up by Singers' Visit

Pastor Rob and Rebecca came, last night, to sing a Taylor Swift song to cheer Cass. Then we asked for more songs. He sang us two hymns. Then, Cass gave him a smile and said he should stick with the Christian songs. Thanks for cheering us with the hymns...for not only did you lift her up a bit but also Gor Gor, Papa and Mama. She was very upset that she was not able to eat much and not able to really chew the food. 

Christian Song Singers
Papa Andy said that she had too much cupcakes and sweet treats....maybe not to bring her anymore treats as she will be more upset for not being able to eat them. She was having the bitter taste of her mouth so she's been asking for water to wash out the taste all night long.
Can't eat the treats :(

Papa Andy was with her last night. Both of them didn't sleep much last night. She had done her 3rd radiation treatment this morning. She is feeling nausea and now is resting. 

Since her radiation treatment is in the morning, the best time to visit her will be in late afternoon or early evening.



Saturday, August 2, 2014

Follow by email...

I had experienced the "Follow by email" function. If you had signed up, you should see an email, when you woke up in the morning, consolidated all the postings from the previous day.
 

Chemo Cycle Done, Radiation to Continue

Caca had finished her first cycle of chemo yesterday. Today is her 2nd radiation treatment and will finish the cycle in 3 more days, i.e. 5 times in this cycle. 

She is vomiting a lot and not feeling well after radiation. However, she's still happy to see her friends and just stayed up a bit to chat with them. 

Please continue to pray for Cass and she needs your prayers support!


Caca was sad and upset! Thanks for all your love!

Caca was very sad and upset after the radiation. She hit herself so hard a few times to express her frustration. I told her that not only I felt the pain as well, but I also knew that she's really in pain physically and mentally. We both cried hard this time. There were so much going on today and she was in pain and was vomiting so badly while she was sent back and forth between Sickkids and Princess Margaret. It appeared that all the medications were not done on the right timing. Thankfully, thank you so much for the cupcakes...the cupcakes had really calmed her down and made her feel better when we gave her the cupcakes. Thank you Matthew Gor Gor for getting her those pretty cupcakes, Edith E E's for the homemade super soft cupcakes, Auntie Connie for the colourful treats and Concy EE's happy face chocolate and "God loves Cassidy" cookie even she was not able to eat much...I believe she felt your love and care.

She will continue on the chemo at midnight and will do the 2nd radiation tomorrow at about 9:30 a.m.
It's so hard and very unrealistic for her to feel well with all the medications and treatments that she is receiving now. Further, it'd become harder and harder for her to eat after chemo and radiation. I pray that God's peace be with her. She will seek for God's help by herself whenever she feels pain and sad. May God's comfort be with her always. Amen.

Cass was happy to have a radiation buddy!

It's a very tough day for Cass and Mama Carmen!

Cass was happy to have a radiation buddy! :)

Friday, August 1, 2014

Papa Andy's sharing

An email from papa Andy few days ago. Many had read, i missed the posting.

Dear all,

七年來,Cassidy每天都要面對生活上的難題,就好像穿衣服、上洗手間這些日常生活必需的事情,對她來說,都不是容易的事,總要花點心思、加點努力,但她都一一的克服了。她要付出比常人雙倍的努力去應付日常生活,怨言雖是有的,但她總能樂觀地面對。因她知道主耶穌拯救了她。

我想,壞的日子總算過去了。正在她要享受她的青春年華的時候,壞消息接腫而來,癌細胞擴散程度連醫生亦束手無策。她正走在生命的盡頭上!

慈愛的神啊!求祢垂聽一個極度悲痛的父親的祈求,我深信天堂是最美好的地方,為信祢的人存留。若祢要讓Cassidy安息在祢懷裡,不用再經歷地上的痛苦,懇求祢,將我也帶去!存留在地上,只不過雖生猶死,我不願意再留在這個被罪惡扭曲、充滿苦難的世界上,可以嗎?

「耶和華啊,求你可憐我,因為我軟弱。耶和華啊,求你醫治我,因為我的骨頭發戰。我心也大大地驚惶。耶和華啊,你要到幾時才救我呢?耶和華啊,求你轉回搭救我!因你的慈愛拯救我。因為,在死地無人記念你,在陰間有誰稱謝你?我因唉哼而困乏;我每夜流淚,把床榻漂起,把褥子濕透。」神啊,求祢聴我的哭求,求祢醫治Cassidy,願我和我家,作祢的見證!

弟兄姊妹,星期三晚上八點,是教會的祈禱會,懇求你出席,為教會守望,為Cassidy祈禱。我們一家也會在Sickkids一同禱告。願神得著當得的榮耀,阿門!

In Christ,
Andy

further update

We back from PMH. They did a CT scan and a mask for her. Will go back again at 6pm to do the radiation on her for both her month and spine. She's really in pain and just gave her more morphine. I am so tired!

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Thank you! 

Radiation to start

The surgeon is performing the biopsy on her mouth tumor right now. It seems Cass has the emergency to do the radiation. The doctor is not sending her to do the MRI & wait again. She will be sending to Princess Margaret to do the radiation right after. Please pray for her,please!

As what I know for now. They are starting her radiation on her for 5 treatment for 5 day starting today. We don't know much about radiation as the doctors are too rush to explain anything.

Please continue to pray.

Thursday, July 31, 2014

Visits - Please contact Carmen

Cassidy likes to have visitors. She's most conscious during 11:00 am - 2:00 pm period. She is joyful especially to see her friends.

Nevertheless, please try letting Carmen knows, via emails, SMS, Messengers etc, before you go visit so as to make sure they are not away for treatment, examinations, etc. Thank you. :)

Biopsy & MRI Tomorrow

The doctors are very concerned about Cassidy and want to keep her for the weekend. The tumour in her mouth has gotten visibly larger, so they want to to see if the tumours on her back are growing as well. The doctors will do biopsy on her mouth tumour and an MRI for both her mouth and her back tomorrow. If the doctors think there is an emergency, they will start the radiation on the weekend; if not, they will start the radiation next Tuesday.

Thank you, Lord! Please help Cass!

I could never thank enough for the love, tender care and prayer support from all my friends, families and brothers and sisters at church! 
Pastor Jacob with a couple came to pray with us while you all were in the prayer meeting at church.
 
Today is Cass's fourth day of chemo. She tolerance the chemo okay but feeling dizzy and vomiting couple times usually in the evening. Her face was swollen and a lump on her chin but the doctor's not sure what caused that and the chemo should be continuing on! She's more awake and happy to see her friends came over to see her. I am still finding ways to reach all her friends in order to let them know about Cass's condition.

I asked Cass if she remembered the instance: 
when she was diagnosed with bone cancer at the age of 7, when I was too hard to sleep and just lying in the bed with her and I couldn't stop my tears. All of sudden she woke up and talk to me: "don't cry mommy, Jesus is helping me, I'll be well!". Then she fell back on sleep! 
She was smiling and slowly shaking her head. Then, I asked her if she would talk to Jesus and asked Him whatever questions she had and whenever she needed Him. She was nodding her head. I prayed that she'd cry out for Jesus and Jesus is in her heart all the time and carrying her through.

Wednesday, July 30, 2014

Prayer Meeting at Church

Prayer meeting at Church tonight. We are with you, Caca, Aaron, Carmen and Andy.

Prayer meeting at Church

Pray for the effectiveness of Chemo

Please pray fervently for the effectiveness of Chemo during these 5 days so as not to get worse in the physical condition! Caca needs your prayer support! We will have prayer meeting, at Church, tonight at 8pm. Come and join us.

The doctor indicated that the plan, after these 5 days, would be to start the next treatment cycle on August 18 provided that there're sufficient blood counts. Side effects could show more during the following 2 weeks at home. Pray that side effects are minimal.

Please, God, please help Caca with Your mighty healing hand! Improvement and control of the tumours, not to get worse. Your will be done! 

Tuesday, July 29, 2014

2nd day of Chemo

It's a day with overwhelming information.


Caca and Phoebe Je Je
Fell into sleep


Thank you to Phoebe Je Je and all the university fellowship friends in our church.....Thank you so much for making her smile to start with her day. She was happy to read all your notes. However, she was too tired to finish all the messages, then she fell asleep with the stuff all around her. Thanks Iris Je Je for getting her the pretty dresses. Caca was happy to see some of her friends, visiting her and showing the love of friendship, and had some good chats.
 
Friendship & love
The doctor and the nurse from palliation team came. They interviewed both Papa Andy and Mama Carmen for information about Caca. They will emphasize in the quality of life for Caca. The goal is to minimize the suffering and pain.

This one probably speaks for Caca's "Quality of Life"





















The Social worker and Interlink nurse came and discussed about possible solution re school and other matters.


The attending physician, Dr. Baruchel - the Oncologist, of Caca's case has mentioned about a meeting they would have on this Thursday. The meeting will involve more doctors from different areas, including ENT etc. They will discuss any possible ways in helping Cassidy. Again, the doctor said that they still had no definite procedures as it is a really rare case. They are seeking possible help from doctors elsewhere.The doctor also mentioned about frequency ultrasound. Again, still many unknowns including next step.
 
We still believe there's miracle in this world. Please continue to pray for Caca.


Papa Andy praying with Caca
1. Pray that, if it's God's will, miracle is going to happen in Caca's life

2. Pray for the strength and encouragement to the family

3. Pray that God will keep Caca strong and minimize the pain and side effects of the treatment

4. Caca, our fighter, to continue in this war. She fought 7 years ago. She has been fighting throughout the past 7 years. She will keep fighting.

Monday, July 28, 2014

Cassidy's prognosis is not good

Cassidy's prognosis is not good, as there are more lesions found in Caca's Bone scan.  On top of the one in her month and on t spine, there are One in sacrum, one in ilium, and many tiny one throughout the spine.  Doctor recommended her to start Chemo ASAP to control the tumor growth.  We don't know if the chemo will work or not, she might need other treatments if chemo doesn't.

Caca's treatment goal has changed from curative to palliation approach meaning all treatments will be for local control only.  She will have a support group from palliation team to ensure her quality of life is achieved.

It is devastating to be told by the doctor that even if Chemo works this time, the cancer will come back again, Caca might have a cancer free period between 6-12 months.  There are still many unknowns at this point and the doctor cannot give us many answers as Caca's case is very unique to them.  We can only take things one step at a time and hope Caca can fight through this just like she did 7 years ago. 



Prayers items:

1. Thank God for having Papa Andy to lead the family with God's word and sharing as well as the unity of the family in praying together fervently.

2. Thank God for the prayer support of you all.

3. Please continue to pray for the grace and mercy of God in leading the physicians in looking after Caca.

4. Pray that God's peace and comfort be with the family especially Caca at this different time.

5.  Pray that God to grant them strength in facing such a situation, and that with God's will to lead the way of Caca and the family.

6. Pray that the pain of Caca is minimal.